My EEG a few months ago came back showing seizure activity in the frontal lobes. I was diagnosed with Partial Seizures which have on occasion transitioned into complex and grand-mal seizures.
Everyone has a different experience during their seizures, and I will explain a little bit about what I go through to the best of my ability.
Growing up as I mentioned in previous blogs I never knew that what I was experiencing were seizures and no one around me even knew that they were. I remember even having wet the bed on certain occasions when I was eleven during the night and now I know that it was because I had night seizures which I still do get on occasion. My doctor at that time had said it was because I had a weak bladder.
My partial seizures effect quite a bit because they are located in my frontal lobes which have a lot to do with your sensory department. I will smell things that aren’t really there, see things that aren’t really there.I will even feel sensations that aren’t really there. I wander sometimes. I have trouble swallowing. My sight will be blurred or glossy looking. I will get an extreme feeling of fear rush over me and panic. Noises can be quite uncomfortable for me.I have trouble speaking.
Over the years my seizures have become different. Lately my Partial seizures begin with a pain in my head that feels like electricity pulsating through my brain and it will get so strong that all I can hear is the pulsing and all that exists is that. Sometimes it will come in clusters and they will intensify in pain and discomfort until my body feels heavy and my chest begins to rise and cave without my control and my breath gets faster and harder to catch. My eyes feel pulled back into my head and all that exists is the electricity and I can’t stand. I fall. I can’t talk, I try, but I can’t and then I am waking from a nap and feel groggy. Ug.. having one right now. That electrical feeling. That’s the thing with Partials that is so uncomfortable, I can tell you when I am having one, even during it except if the…. okay had to pause there it got too intense. As I was saying.
I had two seizures today a part from the 15 Partials that I have had. I am on two – two hundred mg of Carbamazepine a day and Three – 250 mg of Valproic acid a day and I am still having issues. I will have to continue to find the best medication and dosage for my seizures, but so far I haven’t.
I do notice that on my time release of Carbamazepine I feel more.. “Normal” I guess I can put it. Though I still suffer from memory issues and I still have trouble thinking but that’s when a partial is present. Take the good with the bad.
I’m thankful that they are getting a little better, it gives me hope.
Life is too short to worry about all the bad and lose sight of all the good. I don’t want to do that anymore. I know that God has a plan for me.